Tuesday, November 12, 2013

Medical Malarkey

Well, folks. I have been debating about whether or not to say anything on here about this but I have found myself having to make a lot of phone calls over the last couple of days and I figured I might as well be open here too.

Saturday night I suffered a grand mal seizure. Several of you reading this blog will remember that I was diagnosed with epilepsy during college, but I have been seizure-free for many many years and assumed that it was all safely in my past. This caught us completely off guard, and I am just so incredibly thankful that Steve was still here (he was supposed to go out of town on Sunday!) and was able to take care of me and the girls. I am massively mortified that 8 firefighters and EMS staff saw my very messy house but hey, I was fully clothed, so I had that going for me at least.

I fell from standing and hit my head and shoulder pretty hard. My tongue got chewed pretty thoroughly during the seizure and it's still all bruised and tender although getting better every day. The ER staff drew blood and ordered a CT scan of my brain, all of which came back normal. I met with a local neurologist today, who has put me back on a seizure medication and ordered an MRI and a new EEG, which is a test to measure brain waves. My original neurologist had concluded that my seizures were triggered from sleep deprivation (and I 100% agreed with him), but I hadn't been feeling particularly sleep deprived when this seizure struck so I am glad that this neurologist is willing to re-do tests and be as thorough as possible in case something new triggered this seizure.

I have also been very touched and thankful that the few friends and family members that have been told over the phone have been so concerned and willing to help. It really means a lot to me and I am grateful that we have such wonderful friends and neighbors. There really isn't much to do right now, honestly...I am almost 100% back to normal apart from a few bumps and bruises. The biggest impact on us/me/the girls will be my inability to drive for the next several months...a limitation which I think is completely justified. I just beg that local friends be understanding and compassionate when I cancel plans or can't make play dates or girls nights. Steve will be picking up all of the slack in terms of driving and although I know he loves to see me get a good night out, those nights will have to be limited over the next several months just for the sake of the other three people in my family. So please understand, please don't be offended if I have to cancel or can't commit to plans, and come play at our house instead :-). I also have some more research to do, but being back on this seizure medication also maybe means the end of breastfeeding for Maddie, which makes me pretty sad and emotional even though I am so close to my goal of 18 months. Everything we read says something different so I don't really know for sure what I'm going to do with that yet.

In other medical news, we finally had an appointment with a Pediatric Ear Nose & Throat specialist for both of our girls. We have been battling ear infections literally all year and I was glad to finally get a serious look at what was going on. Even after a full 10 day course of antibiotics just last week, both girls were diagnosed with another double ear infection today. An audiologist conducted hearing tests, and both girls showed diminished levels of hearing, but especially low for Anna. The audiologist wasn't surprised at all when I told her that although I thought Anna's vocabulary was advanced for her age, she didn't seem to speak as clearly as some of her friends her age. I also told her that Anna tends to snore, especially with a cold. We have both girls scheduled for surgery to get tubes in their ears next month, and there's a chance they might remove Anna's adenoids too. The ENT doctor also fitted the girls for special ear plugs to wear in the tub and swimming, and sent us home with a pair for each of them. Although I will be so sad to see my little girls go into surgery, I am looking forward to an end to those ear infections and I also hope to improve their hearing!

Anyway, sorry for the huge wall of text. This whole not-driving thing is going to have a major impact on our lives for the next several months so it felt disingenuous not to mention it. I am not sure how much of the epilepsy chatter I will care to share, but I promise to post at least some updates if there are any newsworthy ones. I promise the next few posts will be fun ones with lots of pictures!


Sarah Morgan said...

Sending big hugs Sarah! So glad Steve was there to take care of you!

Kelly said...

One of our good family friends had a grand mal seizure and couldn't drive for six months. He had been episode free for years but same with him-- the sleep deprivation caught up and he seized in his kitchen. Thankfully we live right down the street and were able to take the kids so his wife could bring him to the hospital. If you need anything at all please say the word. We don't live very far and can help out in any way!!

Kristyn said...

Um wow! You are in my prayers and I will give you a great big hug whenever I can. Goodness!

Are you allowed to be in a car at all, just not driving one? If that is the case, I can come up and take you somewhere for a beverage or just away from your house for a bit! It's far, but it would be worth it to come up there! Plus I would love to see your kiddos eventually too!!

Just let me know what you need/want/need to get out of the house because you are going stir crazy and I will be there!

Kirby Lynn said...

Praying for you during this tough time, Sarah. Thank you for sharing. I hate that you've experienced this and hope that you continue to recover well and find some answers.